From Wikipedia, the free encyclopedia
Diagram showing why cancer cells need their own blood supply, the first CRUK released image. See the Commons category for more as time goes by; now over 400.
"When cells cause cancer by giving the wrong messages" - we've finally cracked the file format conversion to start uploading some of our animations!
One of Cancer Research UK's annual "Race for Life" events, here at Cheltenham in 2011

John Byrne (normally User:Johnbod) is Wikimedian/ Wikipedian in residence at Cancer Research UK in London from May to early December 2014, four days per week, using the alternate account User:Wiki CRUK John for edits made in this role ( my editing stats (some also on my main account)).

The only photo Commons used to have for Cancer Research UK's London Research Institute

Objectives

See CRUK's Henry Scowcoft's interview with Medscape.com in September 2014]

From John's WMUK/WMF blogpost (see section below): "Part of the role at CRUK will be to work with the existing medical editors on the English Wikipedia to improve our articles on cancer topics, in particular those on the four common cancers which are widely recognised as having the greatest “unmet need” due to little improvement in survival rates in recent decades. These are cancers of the lung, pancreas, brain and oesophagus. CRUK has just announced a new research strategy with an increased focus on these types of cancers, and my role will complement that. I will also be addressing other cancer-related content, for example in relation to the Medical Translation Project of WikiProject Medicine.

CRUK has access, through its own staff and its access to other researchers and clinicians, to tremendous amounts of expertise, both in terms of science and the communication of science, where they have teams trained and experienced in communicating with a wide range of distinct audiences, from those who write their patient information pages in very plain English to the different teams who produce material for scientists and for general audiences. My boss, Henry Scowcroft, writes for CRUK’s award-winning science blog, and is a Wikipedian. I’ll be exploring a number of approaches in hopes of bringing all this expertise to bear on Wikipedia’s content.

Wikimania 2014 in London, about a mile from CRUK’s HQ, is a great opportunity to bring CRUK and many medical Wikipedians together face to face. A novel aspect of the role is that we are planning to conduct research into the experiences on a range of different types of consumers of Wikipedia’s cancer content. There has been very little formal qualitative research into the experiences of Wikipedia’s readers – we hope this project will begin to address this gap, as well as encourage others to carry out similar projects.

I will also be making presentations and conducting training for key groups of CRUK staff and researchers at their five main research centers in London, Manchester, Glasgow, Oxford and Cambridge. Some of this will be traditional how-to-edit training, but I will also be doing some workshops aimed at people who want to contribute reviews and comments, but who don’t expect to do much editing themselves.

On another tack, I will be working on releasing suitable CRUK images on open licenses and uploading them onto Wikimedia Commons. I think the medical diagrams CRUK has created will be especially useful in Wikipedia articles. We’re already making substantial progress towards a substantial release of content."

Top cancer-related translation targets, from the Popular pages WikiProject Medicine Translation task force list: Cancer, Leukemia , Colorectal cancer, Lung cancer, Breast cancer, Prostate cancer, Stomach cancer, Skin cancer, Health effects of tobacco.

Based on the funding application to the Wellcome Trust, who are funding the project, Wikimedia UK has created a list of the objectives for this project from their point of view. It refers to their strategy structure, which you can see at wmuk:Strategic goals.

CRUK article reviews

These are initial reviews by the internal people who recently reviewed and revised the CRUK (cancerhelp section) pages on this, with the most useful recent papers, which I have working copies of. The idea is to sort these points out in the article before sending the article for review by other outside specialists.

Pancreatic cancer has now had a review by an outside clinical expert, has completed a Wikipedia peer review, and is going through a Featured Article nomination

CRUK images released on open licenses

Wikimedia Commons has media related to Images from Cancer Research UK.
Diagram showing the T stages of bladder cancer

We now have over 400 body diagrams up - not all cancer-specific. More images to follow as the project continues. This is a list of the latest upload. Many thanks to User:Fae for uploading the first main batch. Please help to categorize and use them!

The BaGLAMa2 report shows page views of articles using these images in August, traditionally a low-traffic month, totalled 1.1 million. Subsequent months showed: September, 1.41 million, October 1.43 million, November 1.35 million (cumulative 6.61 million to November). These figures exclude views on mobile & other hand-held devices, which will represent about 30% of total traffic.

Example of an image used (and properly attributed) by the Society for General Microbiology in their blog.

Cancer Statistics

CRUK maintains CancerStats a large web sub-site devoted to cancer statistics, mostly UK but also global. A number of CRUK specialists from the stats team added basic UK stats to several cancer articles on October 3rd - e.g. this, with this note/disclosure on the talk page: "Hi, I'm from Cancer Research UK and going to add some UK stats to the epidemiology section complied from ONS, ISD Scotland, Welsh Cancer Intelligence and Surveillance Unit and the Northern Ireland Cancer Registry as summarised on the Cancer Research UK website". They now plan to do the rest of the 35 cancer types they cover in the same way. What is great is that they are keen to incorporate this into their standard updating procedures.

See: these contributions in particular

Editors involved

Inside CRUK

Email Wikipedia[at]cancer.org.uk - the long-term contact email for CRUK. For now, goes to me as Wikpedian in Residence, and User:HenryScow. Wiki CRUK John ( talk) 16:21, 21 July 2014 (UTC) reply

For other CRUK employees and researchers who have received editing training in 2014 see the training section below, and sub-pages.
For the 2011 training, see User:HenryScow/CRUK Editors


Outside CRUK

Meeting up at Wikimania 2014

As part of the pre-conference events, we had a very successful meeting at CRUK, see the event page on the Wikimania site (and planning on meta:Wiki Project Med/Wikimania 2014 meetup), with editors from 5 continents, and several CRUK staff from various departments. Many thanks to all who came! One result can be seen at Wikipedia_talk:Manual_of_Style/Medicine-related_articles#A_change_to_some_of_our_headings, where improvements to some WP:MEDMOS headings that were discussed are being opened to the WP medical community.

Reports

Interim reports:

Newsletters

Mainly written for CRUK non- or new Wikipedians.

More images

  • Diagram showing nasal cavity cancer that has spread to the lungs
    Diagram showing nasal cavity cancer that has spread to the lungs
  • Diagram showing where melanoma is most likely to develop
    Diagram showing where melanoma is most likely to develop
  • Diagram showing stage T3 cancer of the nasal cavity
    Diagram showing stage T3 cancer of the nasal cavity
  • Diagram showing why cancer cells need their own blood supply
    Diagram showing why cancer cells need their own blood supply
  • Diagram showing the possible scar lines after surgery for oesophageal cancer
    Diagram showing the possible scar lines after surgery for oesophageal cancer

Media mentions

My blogs etc.

Other media

Wikimania 2014

  • video of: "Wikipedia and Medicine", Speaker: James Heilman (09:10 to 45:00 on file)
  • "What does a Wikipedian in Residence in the scientific sector do?", John Byrne & Henry Scowcroft of Cancer Research UK, Sydney Poore, Wikipedian in Residence at Cochrane Collaboration. Video on You Tube, starts at 1:10:30
  • "Medical information online; Wikipedia's place in the ecosystem", panel: James Heilman (Jmh649]/Doc James) MD, CCFP-EM, Clinical Faculty member of the Department of Emergency Medicine, Faculty of Medicine, University of British Columbia (Clinical Instructor), Henry Potts, Senior Lecturer, Centre for Health Informatics and Multiprofessional Education (CHIME), UCL Institute of Epidemiology & Health Care (Bondesgesou), Henry Scowcroft (HenryScow) Cancer Research UK's news and multimedia manager, and John Byrne (Johnbod), now the Cancer Research UK Wikipedian-in-Residence (as Wiki CRUK John). Video here, starts 1:03:20)

2011 project

See here. Training was received courtesy of Wikimedia UK for a number of CRUK staff, mostly those who write CRUK material for their websites and other outputs. User:HenryScow is now managing the Wikipedian-in-residence.

Training

Links

Medical

Research into Wikipedia and medicine

AC list
  1. Taylor-Mendes C (2007). "Proceed with caution: using Wikipedia as a reference". Neonatal Netw. 26 (3): 140–1. PMID  17521060.
  2. Mühlhauser I, Oser F (2008). "[Does WIKIPEDIA provide evidence-based health care information? A content analysis]". Z Evid Fortbild Qual Gesundhwes (in German). 102 (7): 441–8. doi: 10.1016/j.zefq.2008.06.019. PMID  19209572.
  3. Johnson PT, Chen JK, Eng J, Makary MA, Fishman EK (September 2008). "A comparison of world wide web resources for identifying medical information". Acad Radiol. 15 (9): 1165–72. doi: 10.1016/j.acra.2008.02.010. PMID  18692758.
  4. Lacovara JE (June 2008). "When searching for the evidence, stop using Wikipedia!". Medsurg Nurs. 17 (3): 153. PMID  18686418.
  5. Williams N, Mughal S, Blair M (December 2008). "'Is my child developing normally?': a critical review of web-based resources for parents". Dev Med Child Neurol. 50 (12): 893–7. doi: 10.1111/j.1469-8749.2008.03148.x. PMID  19160461. S2CID  25367933.
  6. Clauson KA, Polen HH, Boulos MN, Dzenowagis JH (2008). "Accuracy and completeness of drug information in Wikipedia". AMIA Annu Symp Proc: 912. PMID  18998977.
  7. Clauson KA, Polen HH, Boulos MN, Dzenowagis JH (December 2008). "Scope, completeness, and accuracy of drug information in Wikipedia". Ann Pharmacother. 42 (12): 1814–21. doi: 10.1345/aph.1L474. PMID  19017825. S2CID  2072846.
  8. Stillman-Lowe C (November 2008). "Wikipedia comes second". Br Dent J. 205 (10): 525. doi: 10.1038/sj.bdj.2008.994. PMID  19023293.
  9. Pender MP, Lasserre K, Kruesi L, Del Mar C, Anuradha S (2008). "Putting Wikipedia to the Test: A Case Study". Conference Abstract.
  10. Wolff A (2009). "[Letter on the article "Is medical and health information available from Wikipedia on the Internet evidence based?--a content analysis" published online 2008.06.09]". Z Evid Fortbild Qual Gesundhwes (in German). 103 (1): 34. PMID  19374286.
  11. Fiore F (2009). "[Medications in Wikipedia. Comparison of reliability]". Perspect Infirm (in French). 6 (5): 11. PMID  20120299.
  12. Pender MP, Lasserre KE, Del Mar C, Kruesi L, Anuradha S (December 2009). "Is Wikipedia unsuitable as a clinical information resource for medical students?". Med Teach. 31 (12): 1095–6. PMID  20050104.
  13. Laurent MR, Vickers TJ (2009). "Seeking health information online: does Wikipedia matter?". J Am Med Inform Assoc. 16 (4): 471–9. doi: 10.1197/jamia.M3059. PMC  2705249. PMID  19390105.
  14. Kitchen R (March 2009). "Not an authority (Comment on: Wikipedia use)". Br Dent J. 206 (5): 241. doi: 10.1038/sj.bdj.2009.180. PMID  19287406. S2CID  19958754.
  15. Shawkat E (February 2009). "Wikipedia use (Comment on: Wikipedia comes second)". Br Dent J. 206 (3): 117. doi: 10.1038/sj.bdj.2009.68. PMID  19218928. S2CID  43803925.
  16. Wolff A (2009). "[Letter on the article "Is medical and health information available from Wikipedia on the Internet evidence based?--a content analysis" published online 2008.06.09]". Z Evid Fortbild Qual Gesundhwes (in German). 103 (1): 34. PMID  19374286.
  17. Younger P (2010). "Using wikis as an online health information resource". Nurs Stand. 24 (36): 49–56, quiz 58. doi: 10.7748/ns2010.05.24.36.49.c7772. PMID  20527486.
  18. Friedlin J, McDonald CJ (2010). "An evaluation of medical knowledge contained in Wikipedia and its use in the LOINC database". J Am Med Inform Assoc. 17 (3): 283–7. doi: 10.1136/jamia.2009.001180. PMC  2974620. PMID  20442145.
  19. Wood A, Struthers K (2010). "Pathology education, Wikipedia and the Net generation". Med Teach. 32 (7): 618. doi: 10.3109/0142159X.2010.497719. PMID  20653388. S2CID  218876419.
  20. Leithner A, Maurer-Ertl W, Glehr M, Friesenbichler J, Leithner K, Windhager R (2010). "Wikipedia and osteosarcoma: a trustworthy patients' information?". J Am Med Inform Assoc. 17 (4): 373–4. doi: 10.1136/jamia.2010.004507. PMC  2995655. PMID  20595302.
  21. Rajagopalan MS, Khanna VK, Leiter Y, et al. (September 2011). "Patient-oriented cancer information on the internet: a comparison of wikipedia and a professionally maintained database". J Oncol Pract. 7 (5): 319–23. doi: 10.1200/JOP.2010.000209. PMC  3170066. PMID  22211130.
  22. Metcalfe D, Powell J (December 2011). "Should doctors spurn Wikipedia?". J R Soc Med. 104 (12): 488–9. doi: 10.1258/jrsm.2011.110227. PMID  22179287. S2CID  20876488.
  23. Haigh CA (February 2011). "Wikipedia as an evidence source for nursing and healthcare students". Nurse Educ Today. 31 (2): 135–9. doi: 10.1016/j.nedt.2010.05.004. PMID  20646799.
  24. Lavsa, Stacey M.; Corman, Shelby L.; Culley, Colleen M.; Pummer, Tara L. (2011). "Reliability of Wikipedia as a medication information source for pharmacy students". Currents in Pharmacy Teaching and Learning. 3 (2): 154–8. doi: 10.1016/j.cptl.2011.01.007.
  25. Haigh CA (February 2011). "Wikipedia as an evidence source for nursing and healthcare students". Nurse Educ Today. 31 (2): 135–9. doi: 10.1016/j.nedt.2010.05.004. PMID  20646799.
  26. Kupferberg N, Protus BM (October 2011). "Accuracy and completeness of drug information in Wikipedia: an assessment". J Med Libr Assoc. 99 (4): 310–3. doi: 10.3163/1536-5050.99.4.010. PMC  3193353. PMID  22022226.
  27. Rajagopalan MS, Khanna VK, Leiter Y, et al. (September 2011). "Patient-oriented cancer information on the internet: a comparison of wikipedia and a professionally maintained database". J Oncol Pract. 7 (5): 319–23. doi: 10.1200/JOP.2010.000209. PMC  3170066. PMID  22211130.
  28. Ozdoba C (September 2011). "Wikipedia: A good address for neuroradiologists?". Clin Neuroradiol. 21 (3): 181–2. doi: 10.1007/s00062-011-0098-x. PMID  21853303. S2CID  8966428.
  29. Reavley NJ, Mackinnon AJ, Morgan AJ, et al. (August 2012). "Quality of information sources about mental disorders: a comparison of Wikipedia with centrally controlled web and printed sources". Psychol Med. 42 (8): 1753–62. doi: 10.1017/S003329171100287X. hdl: 11343/59260. PMID  22166182. S2CID  13329595.
  30. Wicks P, Bell V (April 2012). "Letter to the editor: quality of mental health information on Wikipedia". Psychol Med. 42 (4): 891. doi: 10.1017/S0033291712000086. PMID  22313634. S2CID  33334520.
  31. Natarajan A, Racherla S (May 2012). "Wikipedia: encyclopaedia cardiologica". J R Soc Med. 105 (5): 191. doi: 10.1258/jrsm.2012.120012. PMID  22637767.
  32. Aldairy T, Laverick S, McIntyre GT (August 2012). "Orthognathic surgery: is patient information on the Internet valid?". Eur J Orthod. 34 (4): 466–9. doi: 10.1093/ejo/cjr046. PMID  21459834.
  33. Pusz MD, Brietzke SE (September 2012). "How good is Google? The quality of otolaryngology information on the internet". Otolaryngol Head Neck Surg. 147 (3): 462–5. doi: 10.1177/0194599812447733. PMID  22597577. S2CID  8542051.
  34. Volsky PG, Baldassari CM, Mushti S, Derkay CS (September 2012). "Quality of Internet information in pediatric otolaryngology: a comparison of three most referenced websites". Int. J. Pediatr. Otorhinolaryngol. 76 (9): 1312–6. doi: 10.1016/j.ijporl.2012.05.026. PMID  22770592.
  35. Thomas GR, Eng L, de Wolff JF, Grover SC (2013). "An evaluation of Wikipedia as a resource for patient education in nephrology". Semin Dial. 26 (2): 159–63. doi: 10.1111/sdi.12059. PMID  23432369. S2CID  23361618.
  36. Edwards KL, Salvo MC, Ward KE, et al. (February 2014). "Assessment and revision of clinical pharmacy practice internet web sites". Ann Pharmacother. 48 (2): 258–67. doi: 10.1177/1060028013510899. PMID  24259640. S2CID  2660272.
  37. Archambault PM, van de Belt TH, Grajales FJ, et al. (2013). "Wikis and collaborative writing applications in health care: a scoping review". J. Med. Internet Res. 15 (10): e210. doi: 10.2196/jmir.2787. PMC  3929050. PMID  24103318.
  38. Archambault PM, van de Belt TH, Grajales Iii FJ, et al. (2012). "Wikis and collaborative writing applications in health care: a scoping review protocol". JMIR Res Protoc. 1 (1): e1. doi: 10.2196/resprot.1993. PMC  3626140. PMID  23612481.
  39. Dunne SS, Cummins NM, Hannigan A, Shannon B, Dunne C, Cullen W (2013). "Generic medicines: an evaluation of the accuracy and accessibility of information available on the Internet". BMC Med Inform Decis Mak. 13: 115. doi: 10.1186/1472-6947-13-115. PMC  3851567. PMID  24099099.
  40. Schmidt T (2013). "Informal education of medical doctors on the Internet". Stud Health Technol Inform. 190: 92–4. PMID  23823386.
  41. Burgos C, Bot A, Ring D (June 2012). "Evaluating the effectiveness of a wiki internet site for medical topics". J Hand Microsurg. 4 (1): 21–4. doi: 10.1007/s12593-012-0064-0. PMC  3371116. PMID  23730084.
  42. Azer SA (February 2014). "Evaluation of gastroenterology and hepatology articles on Wikipedia: are they suitable as learning resources for medical students?". Eur J Gastroenterol Hepatol. 26 (2): 155–63. doi: 10.1097/MEG.0000000000000003. PMID  24276492. S2CID  7760287.
  43. Fahy E, Hardikar R, Fox A, Mackay S (2014). "Quality of patient health information on the Internet: reviewing a complex and evolving landscape". Australas Med J. 7 (1): 24–8. doi: 10.4066/AMJ.2014.1900. PMC  3920473. PMID  24567763.
  44. Hasty RT, Garbalosa RC, Barbato VA, et al. (May 2014). "Wikipedia vs Peer-Reviewed Medical Literature for Information About the 10 Most Costly Medical Conditions". J Am Osteopath Assoc. 114 (5): 368–73. doi: 10.7556/jaoa.2014.035. PMID  24778001. S2CID  40519767.

Most-viewed Wikipedia cancer articles

Missing any? Please add - lymphoma is in top 6-7

Notes on articles

Short, jargon-only

Henry's picks

Human papillomavirus - Intro wrong re types
Incredibly US focused (tho’ mentions the big European trial): Prostate cancer screening
Always a fun topic to fight over:

[Mobile_phone#Health_effects], Mobile_phone_radiation_and_health

There is *nothing* on the ‘alcoholic beverage’ page about health, let along cancer…

Alcoholic_beverage#Ethanol_considered_as_a_drug but (JB) Alcohol_and_cancer gets 60K vpa and is a terrible article

Only tangential mention of cancer on either of these pages:

Obesity, Body_fat - but (JB) Obesity-associated_morbidity gets 17K vpa & is a terrible title, really terrible article. Diet and cancer doesn't cover either.

But there is here: Overweight


http://en.wikipedia.org/wiki/Exercise Under ‘health effects’ – has a section on everything *except* cancer (and mentions obliquely just a couple of times).

Barely mentions cancer: http://en.wikipedia.org/wiki/Hormone_replacement_therapy

Could do with a check: http://en.wikipedia.org/wiki/Air_pollution#Cancer

Likewise: http://en.wikipedia.org/wiki/Carcinogen#Occupational_carcinogens

However, this is excellent: http://en.wikipedia.org/wiki/Superfoods

Popular pages

Cancer site links

Event evaluation links

blogs etc

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